Erythema Nodosum: The Pain Of A Diagnosis With Pictures
My beautiful little girls are 3 years & 4 weeks old.
A week ago I could put both of my arms over my head, now I can not
A week ago I could get out of bed without welling up in tears over the pain. It makes me scream out and then cry out of sheer frustration.
A week ago I could walk without a limp. My knees felt like knees not like my worst enemies. I find myself craving a wheelchair on most days. It keeps getting worse so I’ll need something unless it starts clearing up like now.
A week ago my legs looked like normal non-bumpy, lumpy, red, blotchy, and non-ugly calves and thighs. Everyday now I wake up and fear what I will see next when I turn on the light in the bathroom. It never looks any better, only worse.
A week ago I was able to partake in normal activities. Swing my babies in the air, wear a skirt if I chose to, go roller skating, hang upside down on the monkey bars and play hide and seek with the kids. Now I scream ouch when they touch me (They don’t know any better, but it really hurts to be touched on these swollen welts and in many other affected places. Nearly my entire body. My joints all throb!)
I lie down fighting massive fatigue both day and night, attempting to type from a vertical position. Although now my wrist joints have been affected. Lying here with my legs elevated on pillows to try and keep some of the swelling down.
It looks worse now than in these pictures taken yesterday morning.
It’s my last day of antibiotics. When will it start clearing up, damn it?
Pardon my stubble. I haven’t been able to shave. Can’t bend over that long and do NOT want to prick anything anyway.
A week ago my body seemingly got over a massive cold/ virus. Possibly a strep infection (but we’ll find out.) It was something that needed antibiotics, but how could I have known? Usually, going to the doctors is just a way of getting sick with something else and leaving without a script nowadays. I had no idea what would happen. If you ever feel really sick PLEASE visit your doctor.
The effect on my eyes from the virus going untreated.
If only I knew what was coming I would not have gotten upset over the eyes.
Now my body is in a raging battle with itself. It’s far from a pretty one. First the conjunctivitis (pink eye and swelling) to now something that is called Erythema Nodosum. A very painful condition my doctor believes I got because of an underlying illness that created this massive uproar inside of myself.
I’m taking anti-inflammatories, antibiotics, and pain meds when I need them, which I do, though they don’t work very well. There isn’t much else that can be done but to wait it out and pray. It can take 2-6 weeks ‘traditionally’ (dear God). Please pray I am at the lower end of that. I can’t take much more.
I can’t be close to myself with this crummy disease. I feel like I’m being cheated out of my life right now. I’m extremely emotional and frustrated by it. It hurts in more ways than one. Every joint, every muscle. It feels like I ran a 100 mile marathon without any stretching each and every day, and than some. I get the results from my 12 vials of blood work (YIKES) and chest x rays on Tuesday to know all. Wish me luck please. I’m still nervous.I don’ know if I can make it that long.
So far this is not the cancer that I feared so greatly back on Wednesday when I spotted lumps making me think of swollen lymph nodes, but now that the relief of that has subsided, I just want this horrendous condition to just GO AWAY and never come back! My life has been brought to a halt. Mom on the go is crying because she’s in pain and she can’t be on the go anymore. Life as she knew it..gone for now.
Friends and family are treating me like a leper. They have been leaving me out not wanting to be around me or me around them and their kids. It hurts so much 😥 !
To anybody else who is suffering from Erythema Nodosum right now, my extreme compassion and well wishes are with you.
Moral of the story: Never take from granted both the big and the little things in life. Including your own personal comfort and the ability to stretch out your arms to the sky and hug your loved ones without pain.