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One Response to “Endometriosis Is The Devil: Is There ANY Way To Kill This Pain?”

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  1. Brandi Quinn

    We all need to vent, and cry that’s how we can go on being strong. I started my period when I was 10 a year later the cramps were so bad I couldn’t even sit. I was told some women have bad cramps.my mother would not take that for an answer. So for the next 2 years and doctor after doctor, 4 surgeries And being sent to psychologist in between (who would send me back saying there is something physically wrong with this girl figure it out ) I was finally diagnosed with stage 4 Endometriosis when I was thirteen. They didn’t know what to do with me. At that time as far as the medical community was concerned you couldn’t have endo at this age.this is what my dr said. But that is exactly what you have and I’ve never seen anything like this. It takes 5+ yrs to get to stage 1 he said your 13 and started your period at 10 which is really young but that’s only 3 years and well I have to say stage 4 bc that’s all there is. I have had many endo patience over the years & have a couple now. I’ve there were a few who were stage 4. He told me it was like my uterus was wallpapered with it and that I had no chance of ever having a baby. From the way it looks you couldn’t have one now let alone when your older. And ready to have one. And My nightmare begins . since they had no clue what to do bc of my they said the only thing we can do is treat the pain & we’ll put you on birth control to see if that helps any, and we will have to go in and clean it all off so anywhere between 6 to 9 months they did they didn’t have lasers they used like a cauterizing tool. And every time it came back, it came back with a vengeance & when I was 14 I had talked my dr into doing a hysterectomy. After surgery I was so happy inside the nightmare is coming to an end. When I got back to my room from recovery he came in to talk to us about how things went. He said Brandi I am very sorry but when I got in there I just couldn’t do it so I just cleaned it off again. Then said that there was a treatment we could try I spoke to a colleague who said they were having good results with lupron( which is a whole other thing poison) so far I’ve had 28 surgeries. I lost 2 out of 3 pregnancies, God blessed me with a baby boy, he’s 17 now. I’m 41
    It’s been about 31yrs that I’ve been in pain. It ain’t easy up till a few years ago I didn’t know anyone with it no one to talk to that knew what I was going through I was so alone with it
    That’s why I love all these groups. They do make it easier to deal with it. So vent away sweetie

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